Connor Richardson
06 June, 2022
19738 Social Media Instagram Group1080x1080 629db74f9d2cf

We know 26, 500 people who need your help

The Neurofibromatosis Association – trading as Nerve Tumours UK– supports those who have been diagnosed with Neurofibromatosis (NF), together with their carers, families, and wider support network. Forty years on, as the leading voice for people living with Neurofibromatosis Type 1, Type 2 and Schwannomatosis in the UK, we are committed to raising awareness, providing support and making their every day better.

Neurofibromatosis - the umbrella term for a group of genetic conditions (Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2) and Schwannomatosis) and literally translating to mean “Nerve Tumour Increase” - is one of the most common neuro-genetic conditions, causing tumours to grow on nerve endings. It has many associated medical, physical, and psychological conditions: 60% of those affected have learning disabilities, and up to 75% are registered as disabled. People with NF live in constant pain, can be vulnerable and are often isolated.

More people are diagnosed with NF than those with Hereditary Muscular Dystrophy, Huntington's Disease and Cystic Fibrosis combined, yet few - including many medical professionals - have heard of the condition.

Nerve Tumours UK provides support and advice for people with NF, and the medical professionals involved in their care, through a Specialist Support Network - regional nurses and advisors, a national helpline, a fully accessible website, regional information days, medical guidelines and much more. There are more than 26,500 people in the UK who have Neurofibromatosis – and yet we only have a frontline team of 12 specialists. We need to provide more support in all areas of the UK,

" Not only do we need to raise the profile of Neurofibromatosis amongst medical professionals, but we also need to let the public know that we are here to help, and about the support services that we can offer for both children and adults, who are diagnosed with the condition."

– Karen Cockburn, Charity Director

To find out more, go to to call our helpline Monday and Wednesday 9am to 5pm on 0793904630 

Recommended Reading

abpco 2021
Manchester Bee
Stockport Food bank
CPD Member
Living Wage Member
Good Employment - Sponsor
Good Employment - Member
Convenzis Healthcare Event testimonials

What our clients say about us

Working with Convenzis is a stress-free and a rewarding experience, with fantastic engagement from a highly targeted and relevant audience


I worked with Convenzis, primarily Dan, for the first time this year, putting together a bespoke online event for IBM. He has always been so responsive and accommodating. The team always remained professional and helpful – despite the many demands from our side! They were very keen for us to maximise on the investment and revisit those attendees who had not committed to follow ups.
It was an absolute pleasure doing business with Convenzis and I know there will be more opportunities next year. Looking forward to it!


In view of the recent NHS Oncology Conference organised by CONVENZIS which was sponsored by Pascoe Healthcare Ltd, CONVENZIS exhibited professionalism through credible organisation, invitation of delegates/respectable Speakers and general conduct of the entire conference. This has also shown that CONVENZIS is a great partner in business which is fundamental to ROI of partnering Companies even in the wake of the pandemic.

Pascoe Healthcare

“We’ve worked with the Convenzis team for several years and their events are a regular occurrence for us. Not only is the content always extremely topical, but the speakers are always excellent and the support from the team ahead of and during the events is exceptional. The team are incredibly receptive to feedback and always goes above and beyond – a real pleasure to work with!”


“It has been a pleasure to work with Matt and Dan for the past few events. Everything has always run smoothly and we’ve always managed to gather a large number of interested parties due to the events they have hosted.

They are also very helpful and timely in their responses, which has made working with them very easy “


Our previous experience and supporting stats


In-person Conferences Held


Virtual Conferences Held


Delegates in attendance on the day


Management level and above delegates


Sponsorship Packages Taken


Number of Sponsors we have Worked with

Get Social

Stay in the loop, add our socials, and never miss an event!