Healthcare Events

Neurofibromatosis European Meeting – Manchester

08:00 am
10 Oct, 2022 - 11 Oct, 2022
Mercure Manchester Piccadilly Hotel

Neurofibromatosis European Meeting – Manchester

08:00 am
10 Oct, 2022 - 11 Oct, 2022
Mercure Manchester Piccadilly Hotel

Neurofibromatosis European Meeting – Manchester

20th Neurofibromatosis Meeting Manchester 10-11 October 2022

The 20th European Neurofibromatosis Meeting will be held in Manchester UK in October 2022 as a face to face conference. Whilst virtual conferences have led to a new way of working collaboratively internationally, these have somewhat stifled new collaborations as we have missed out on meeting socially together, as well as being able to talk face to face around posters. The Manchester conference will be organised as a face to face conference, however, if the pandemic continues to challenge us we will convert to a hybrid conference enabling those who are not ready for face to face meetings to have access to the full programme. This will be the 20th European Neurofibromatosis Conference representing over 30 years of NF conferences in Europe. The last conference was held in Rotterdam as a virtual conference in 2020 and previous conferences included the global Paris conference in 2018, the 2016 conference in Padua,2014 in Barcelona with the 15th European NF meeting being held in Istanbul. This 2022 conference will be the second time that Manchester has hosted the European NF Conference. Manchester has a world-leading reputation in neurofibromatosis research and is one of just two highly specialised services for NF1 in England, as well as the lead centre for the four centres NF2 highly specialised service set up in 2010. NF research began in the late 1980s in Manchester with Manchester producing the first management consensus guidelines at Old Trafford in 2004. Manchester has a rich history of clinical, epidemiological and molecular research on NF1, NF2 and Schwannomatosis. We trust that the Manchester conference will be an opportunity to bring us all together again to foster new research collaborations and to update ourselves on the most advanced research on neurofibromatosis. We look forward to welcoming you to Manchester.

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Neurofibromatosis European Meeting – Manchester

Speakers

Andy King

Consultant Neurosurgeon, Northern Care Alliance NHS Foundation Trust and Co-Lead Manchester HSS NF2 Service

David Geffen

Dr Grace Vassallo

Consultant Paediatric Neurologist and Clinical Lead HSS Complex NF1 Service

Dr. Shruti Garg

Consultant in Child and Adolescent Psychiatry and Clinical Research Fellow

Prof Michel Kalamarides

Professor and Director of Neurosurgery

Prof Eric Legius

Professor of Human Genetics

Prof Gareth Evans

Professor in Medical Genetics and Cancer Epidemiology Clinical Lead Manchester HSS NF2 Service

Prof Juha Petonen

Cancer Research Unit and institute of Biomedicine

Prof Marco Giovannini

Professor of Neck and Head Surgery

Prof Rosalie Ferner

Professor of Neurology/National Lead

Prof Scott Plotkin

Professor of Neurobiology

Prof Stavros Stivaros

Professor Paediatric Neuroradiology and Translational Imaging

Sponsors & Partners

The Agenda

09:00

Registration, Networking & Breakfast

Registration, Networking & Breakfast

10:00

Introduction

Dr Grace Vassallo
Consultant Paediatric Neurologist and Clinical Lead HSS Complex NF1 Service
Manchester University NHS Foundation Trust
Andy King
Consultant Neurosurgeon, Northern Care Alliance NHS Foundation Trust and Co-Lead Manchester HSS NF2 Service
Manchester University Hospital NHS Foundation Trust
Introduction Dr. Grace Vassallo- Consultant Paediatric Neurologist and Clinical Lead HSS Complex NF1 Service Manchester University Hospital NHS Foundation Trust and Professor Andy King – Consultant Neurosurgeon, Northern Care Alliance NHS Foundation Trust and Co-Lead Manchester HSS NF2 Service Manchester University Hospital NHS Foundation Trust

10:15

Keynote Lecture: 32 Years as an NF-ologist

Prof Gareth Evans
Professor in Medical Genetics and Cancer Epidemiology Clinical Lead Manchester HSS NF2 Service
University of Manchester UK
Keynote Lecture Prof Gareth Evans Professor in Medical Genetics and Cancer Epidemiology (Confirmed) Clinical Lead Manchester HSS NF2 Service Manchester University Hospital NHS Foundation Trust Prof Gareth Evans Professor in Medical Genetics and Cancer Epidemiology (Confirmed) 32 Years as an NF-ologist

10:45

Alexion Main Sponsor for Conference Presentation

Alexion Main Sponsor for Conference Presentation

11:30

Oral Presentations NF2

Oral Presentations NF2

12:15

Lunch and Networking Break

Lunch and Networking Break Breakout session room 1 (NF1 Neuromuscular interest group- Lead Dr. Amish Chinnoy) Breakout session room 2 ( NF2 Prof Gareth Evans)

13:15

Keynote Presentation: SPRED

Prof Eric Legius
Professor of Human Genetics
University of Leuven Belgium
Keynote Lecture SPRED

13:45

Case Presentation x2

Case Presentation Manchester

14:15

Oral Presentations - NF1

Oral Presentations 10 Minutes Each

15:00

Networking and Coffee Break

Networking and Coffee Break

15:30

Keynote Presentation: Epidemiology of NF1 and NF2 in Finland

Prof Juha Petonen
Cancer Research Unit and institute of Biomedicine
University of Turka Finland
Prof Juha Peltonen, Cancer Research Unit and Institute of Biomedicine University of Turku Finland (Confirmed) Epidemiology of NF1 and NF2 in Finland

16:00

Molecular Diagnosis of Mosaic Disease in the NF1 clinic

Molecular Diagnosis of Mosaic Disease in the NF1 clinic Dr. Emma Burkitt-Wright Consultant Clinical Geneticist HSS Complex NF1 service Manchester, Manchester University Hospital NHS Foundation Trust

16:30

Oral Presentations- 3 x 10 mins

Oral Presentations- 3 x 10 mins

17:00

Keynote Presentation: Key neuroradiological features in Paediatric NF1 and NF2

Prof Stavros Stivaros
Professor Paediatric Neuroradiology and Translational Imaging
University of Manchester UK
Keynote Lecture Key neuroradiological features in Paediatric NF1 and NF2

17:30

Close of Event Day 1

Close of Event Day 1

19:00

Conference Meal, Awards and Entertainment

Conference Meal, Awards and Band Entertainment

08:00

Registration, Networking & Breakfast

Registration, Networking & Breakfast

Poster viewing

09:00

Keynote Presentation: MPNST

Prof Rosalie Ferner
Professor of Neurology/National Lead
Guy's and St Thomas' Foundation Trust and HSS Complex NF1 Service in the UK
Keynote Lecture Prof R Ferner Professor of Neurology Guy`s and St. Thomas` Foundation Trust and National Lead for the HSS Complex NF1 service in UK MPNST

09:30

Case Presentation - Title TBC

Mr. Maninder Kalkat, Consultant Cardiothoracic Surgeon, University Hospitals Birmingham NHS Foundation trust

09:45

Challenges of a giant thoracic meningocele with insights from the histology

Case Presentation - Mr Joshi George, Consultant Neurosurgeon HSS Complex NF1 Service Manchester University Hospital NHS Foundation Trust and Northern Care Alliance NHS Foundation Trust

10:00

Case Presentation TBC

Case Presentation TBC

10:15

Oral Presentations- 3 x 10 Mins

Oral Presentations 10 Minutes Each

10:45

Keynote Presentation: Animal Models in NF

Prof Marco Giovannini
Professor of Neck and Head Surgery
University of California Los Angeles
David Geffen
University of California Los Angeles
Animal Models in NF

11:15

The ultimate in MDT work-Paediatric NF1 case.

Dr Grace Vassallo
Consultant Paediatric Neurologist and Clinical Lead HSS Complex NF1 Service
Manchester University NHS Foundation Trust
Manchester Case Presentation The ultimate in MDT work-Paediatric NF1 case. Dr. Grace Vassallo- Consultant Paediatric Neurologist and Clinical Lead HSS Complex NF1 Service Manchester University Hospital NHS Foundation Trust

11:30

Poster Presentations

Poster Presentations

12:00

Lunch and Networking

Lunch and Networking Breakout session room 1 (Neurovascular disease in NF1) Breakout session room 2 (MEK inhibitors in NF1 adult and Paediatrics UK service development etc)

13:00

Keynote Presentation: Medical Therapy in NF2

Prof Scott Plotkin
Professor of Neurobiology
Harvard
Keynote Lecture Medical Therapy in NF2

13:30

Treatment of Ependymoma in NF2

Prof Michel Kalamarides
Professor and Director of Neurosurgery
Pitie-Salpetrire Hospital
Keynote Lecture Prof Michel Kalamarides Professor and Director of Neurosurgery at Pitie-Salpetrire Hospital (Confirmed) Treatment of Ependymoma in NF2

14:00

Brain Stem Gliomas in Adult NF1-

Ms Tina Karabatsou Consultant Neurosurgeon HSS Complex NF1 Service Manchester University Hospital NHS Foundation Trust and Northern Care Alliance NHS Foundation Trust

14:15

How we image NF1

Dr. Calvin Soh Consultant Neuroradiologist HSS Complex NF1 Service Manchester University Hospital NHS Foundation Trust

14:30

Networking and Coffee Break

Networking and Coffee Break

15:00

Symposium: Advancing treatments for NF1 related cognitive and behavioural difficulties

Dr. Shruti Garg
Consultant in Child and Adolescent Psychiatry and Clinical Research Fellow
The Institute of Brain, Behaviour and Mental Health, University of Manchester, UK
Keynote Presentation

15:10

Insights from longitudinal studies of brain development in NF1 (EDEN)

Insights from longitudinal studies of brain development in NF1 (EDEN)

15:30

Early intervention studies in infancy

Prof Jonathan Green, Professor of Child/Adolescent Psychiatry University of Manchester and Honorary Consultant Child & Adolescent Psychiatrist at Manchester University NHS Trust

15:50

Novel interventions in NF1

Dr. Shruti Garg
Consultant in Child and Adolescent Psychiatry and Clinical Research Fellow
The Institute of Brain, Behaviour and Mental Health, University of Manchester, UK
Novel interventions in NF1

16:00

Prize Presentation and Close of Event

Prof Gareth Evans
Professor in Medical Genetics and Cancer Epidemiology Clinical Lead Manchester HSS NF2 Service
University of Manchester UK
Dr Grace Vassallo
Consultant Paediatric Neurologist and Clinical Lead HSS Complex NF1 Service
Manchester University NHS Foundation Trust
Close of Event Prof Evans and Dr. G.Vassallo

16:15

Q&A Panel

Q&A Panel

Book your Place

Ticket
Price
Quantity
In-person with Evening Meal (Meal on the 10th)- Both Days
£350.00 excl VAT
Unlimited places
0
In-person - Day 1 (No Evening Meal)
£150.00 excl VAT
Unlimited places
0
In-person - Day 2 - (No Evening Meal)
£150.00 excl VAT
Unlimited places
0
In-person Both Days - (No Evening Meal)
£300.00 excl VAT
Unlimited places
0
Evening Meal - 10th October
£50.00 excl VAT
Unlimited places
0
In-person with Evening Meal (Meal on the 10th) - Day 1
£200.00 excl VAT
Unlimited places
0
In-person with Evening Meal (Meal on the 10th) - Day 2
£200.00 excl VAT
Unlimited places
0
Allied Health Professionals, Medical Students and Nurses - Both Days (In-Person)
£150.00 excl VAT
Unlimited places
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Allied Health Professionals, Medical Students and Nurses - 1st Day (In-Person)
£75.00 excl VAT
Unlimited places
0
Allied Health Professionals, Medical Students and Nurses - 2nd Day (In-Person)
£75.00 excl VAT
Unlimited places
0

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